APA Patient and Family Centered Care and Qualitative Research Combined SIG

Monday, May 1, 2023

11:30 AM – 2:30 PM ET

Location: Convention Center: West Overlook

CE: Live CME: 3.00

SIG Chair(s)

Jody Lin (she/her/hers)

Assistant Professor
Pediatrics
University of Utah
Salt Lake City, Utah, United States
DL

Divya Lakhaney, MD (she/her/hers)

Assistant Professor of Pediatrics
Columbia University Irving Medical Centrr
New York, New York, United States
Stephanie Squires, MD (she/her/hers)

Pediatric Hospital Medicine Fellow
Lucile Packard Children's Hospital Stanford
Palo Alto, California, United States
Caroline Paul, MD (she/her/hers)

Associate Professor
Pediatrics
NYU Grossman School of Medicine
New York City, New York, United States
Linda Tewksbury, MD, MHPE (she/her/hers)

Clinical Associate Professor of Pediatrics
New York University Grossman School of Medicine
New York, New York, United States
AL

Ashwini Lakshmanan, MD, MS, MPH (she/her/hers)

Associate Professor, Health Systems Science
Pediatrics
Kaiser Permanente Bernard J. Tyson School of Medicine
Pasadena, California, United States
Colleen Wallace, MD (she/her/hers)

Associate Professor of Pediatrics
Washington University School of Medicine
Saint Louis, Missouri, United States

Disclosure(s):

Jody Lin: No financial relationships to disclose

Divya Lakhaney, MD: No financial relationships to disclose

Stephanie Squires, MD: No financial relationships to disclose

Caroline Paul, MD: No financial relationships to disclose

Linda Tewksbury, MD, MHPE: No financial relationships to disclose

Ashwini Lakshmanan, MD, MS, MPH: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Colleen Wallace, MD: No financial relationships to disclose

Session

Description: Advancing Shared Decision Making Research Using Qualitative Methods The growing interest in shared decision making (SDM) as a tool to improve patient care necessitates higher quality research to advance the field. In this relatively understudied area, qualitative methods are a powerful tool to build a robust understanding of patient, family, and provider experiences to inform the provision of high quality SDM in clinical practice. This session blends a symposium-style series of talks on cutting edge research in SDM with didactics on SDM and qualitative research methods and concludes with an experiential small-group exercise that will culminate in potential future projects in SDM using qualitative methods.

The session will start with brief didactics on the state of SDM research and an overview of qualitative research methods. Then, 3 speakers will present their individual qualitatively-grounded research in SDM. In between speaker presentations, a moderator will facilitate interactive discussion and Q&A amongst the speakers and a qualitative research expert focused on the application of qualitative methods and the next steps for SDM research. After open Q&A, participants will work in breakout groups to design a qualitative research study about SDM. Each breakout table will have a family partner and qualitative expert to provide insight. The session will conclude with open sharing of research designs. The last part of the session will be dedicated towards business meetings for the individual SIGs.

Speakers:
patient caregiver from the Children’s National Hospital Patient and Family Advisory Council
Dr. Jan Hanson (qualitative research)
Dr. Ellen Lipstein (health services research)
Dr. Meghan Halley (bioethics)

Learning Objectives:

To understand when and how shared decision making can improve patient care.
To understand basic qualitative research methods.
To develop a qualitatively-grounded research study on shared decision making.

Presentations:

11:30 AM – 11:40 AM ET

A Brief Overview of Shared Decision Making
SIG Speaker: Jody Lin (she/her/hers) – University of Utah
11:40 AM – 11:50 AM ET

A Primer on Qualitative Research Methods
SIG Speaker: Linda Tewksbury, MD, MHPE (she/her/hers) – New York University Grossman School of Medicine
11:50 AM – 12:10 PM ET

Patient and Family Advisor Presentation
Speaker: Darcel Jackson, CPXP, LSSGB (she/her/hers) – Children's National Hospital
Speaker: Jana Monaco, PFAC
Speaker: Lisa Magerl, PFAC (she/her/hers) – Children's National Hospital
12:00 PM – 12:10 PM ET

Health Services Research in Shared Decision Making
SIG Speaker: Ellen A. Lipstein, MD, MPH (she/her/hers) – Cincinnati Children's Hospital Medical Center
12:20 PM – 12:30 PM ET

Bioethics in Shared Decision Making
SIG Speaker: Meghan C. Halley, PhD, MPH (she/her/hers) – Stanford University School of Medicine
12:30 PM – 12:40 PM ET

Panelist: Qualitative Methods Expert
SIG Speaker: Janice L. Hanson, MAEd, EdS, PhD, MH – Washington University in St. Louis School of Medicine