Reinforce speaker roles and responsibilities for the PROCYSBI Speaker Bureau, including compliance guidelines and processes
Review the latest patient- and health care provider (HCP)-focused content and discuss best practices for effective and compliant communication of information
Discuss unmet needs for patient/caregiver and HCP education about cystinosis and identify potential approaches to evolve the program format
Examine new and updated resources developed for patients with cystinosis, caregivers, and HCPs
