293 - Family Perspectives on After Visit Summaries in a Multidisciplinary Pediatric Neuromuscular Clinic
Saturday, April 29, 2023
3:30 PM – 6:00 PM ET
Poster Number: 293 Publication Number: 293.204
Dorothy Adu-Amankwah, Icahn School of Medicine at Mount Sinai, New York, NY, United States; Agathe M. de Pins, Icahn School of Medicine at Mount Sinai, New York, NY, United States; Skylar M. Hess, Icahn School of Medicine at Mount Sinai, New York, NY, United States; Brijen Shah, Icahn School of Medicine at Mount Sinai, New York, NY, United States; Sheena Ranade, Mount Sinai Health System, New York, NY, United States; Kristin A. Shadman, University of Wisconsin School of Medicine and Public Health, Madison, WI, United States; Cordelia R.. Elaiho, The Mount Sinai Kravis Children's Hospital and Medical College of Wisconsin, New York, NY, United States; Elaine Lin, Icahn School of Medicine at Mount Sinai, New York, NY, United States; Robert Fields, Icahn School of Medicine at Mount Sinai, New York, NY, United States
Medical Student Icahn School of Medicine at Mount Sinai New York, New York, United States
Background: Healthcare for children with medical complexity (CMC) remains fragmented, increasing burdens of caregivers. Multidisciplinary (multi-D) clinics are a growing approach to improve coordinated care. After Visit Summaries (AVS) are critical aspects of communication that can improve care coordination; however there are few published studies assessing families’ experiences with after visit communication. Objective: To assess family perspectives of After Visit Summaries (AVS) that caregivers receive following a multi-D clinic visit. Design/Methods: A subset of the validated Family Experiences with Coordination of Care (FECC) survey was administered to 21 caregivers at our Pediatric Multi-D Neuromuscular Clinic, which includes up to 13 different specialty providers. Surveys were administered in English or Spanish and completed either online by a caregiver or over the phone with a researcher. Answers were coded according to FECC standards. Additionally, four caregivers were interviewed using open-ended questions about their experiences with the AVS. Interviews were audio-recorded, transcribed, and coded for themes. Results: The median age was 6 years (1-20), with 47.6% female and 52.4% Hispanic patients (Table 1). Most caregivers (90.5%) indicated that a plan for follow-up care was always included (Table 2). Using the FECC scoring, plan for follow-up care had the highest mean (93.18/100). The lowest means were centered on shared care plans (mean = 72.73/100) and the inclusion of the names of all specialists seen at each visit (mean=72.73/100). In the qualitative interviews, frequent themes emphasized by families were organization, purpose of AVS, time of review of AVS, conciseness, and comprehension (Table 3). Caregivers qualitatively described that the AVS can be overwhelming if it is visually unappealing, superfluous, or uses medical jargon.
Conclusion(s): This study suggests that structured after-visit communication may enhance care coordination and decrease caregiver burden for families of CMC. Future improvement work is needed to optimize AVS content and readability.
