APA SIG

Children with Chronic Conditions

Developmental and Behavioral Pediatrics

Diversity, Equity, and Inclusion

General Pediatrics

Health Equity/Social Determinants of Health

Health Services Research

Session Type: APA SIG

APA Complex Care SIG

Friday, April 28, 2023

3:45 PM – 5:15 PM ET

Location: Convention Center: 154 AB

CE: Live CME: 1.50

SIG Chair(s)

Emily Goodwin, MD (she/her/hers)

Clinical Associate Professor of Pediatrics
General Academic Pediatrics
Children's Mercy Kansas City
Kansas City, Missouri, United States
Kathleen Huth, MD MMSc

Assistant Professor of Pediatrics
Pediatrics
Boston Children's Hospital/Harvard Medical School
Boston, Massachusetts, United States
Debbi Harris, MS, MA

Family Leader
Family Voices of Minnesota
Eagan, Minnesota, United States

Co-Chair(s)

Catherine Diskin, MB BCh BAO MSc (she/her/hers)

Assistant Professor
The Hospital for Sick Children

Disclosure(s):

Emily J. Goodwin, MD: No financial relationships to disclose

Kathleen Huth, MD MMSc: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Debbi Harris, MS, MA: No financial relationships to disclose

Ruchi Kaushik, MD, MPH: No financial relationships to disclose

Session

Description: Learning from the past to build the future for Children with Medical Complexity and their familiesThe Maternal and Child Health Bureau (MChB) funded a four year improvement project, the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN) with multiple goals including improving child quality of life, family wellbeing and the cost-effectiveness of care. Principal Investigator, Meg Comeau will explore high-level learnings from this national project including the value of effective family partnership, how to operationalize it and navigate challenges including equity. In 2022, the MChB published A Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families which considers four critical, interconnected areas including health equity, family and child well-being and quality of life, access to services, and financing of services. Reflecting a focus of 2023 PAS, namely the Impact of Policies on Health and Research, policy-makers including representatives from state agencies, health services researchers, clinicians and the audience will discuss how the blueprint can support the holistic care that children with medical complexity and their families need.

Learning Objectives:

Describe the value of partnership with patients and their families when considering health system change from the perspective of patients and families, clinicians, and policymakers.
Examine the four areas of focus of A Blueprint for Change (health equity, family and child well-being, access to services and financing of services)
Consider potential strategies for the realization of the Blueprint.

Presentations:

3:45 PM – 4:30 PM ET

Panel Chair
SIG Speaker: Catherine Diskin, MB BCh BAO MSc (she/her/hers) – The Hospital for Sick Children
4:30 PM – 4:55 PM ET

Lessons from efforts to Advance Care for Children with Medical Complexity (CMC CoIIN)
SIG Speaker: Meg Comeau, MHA (she/her/hers) – Boston University School of Social Work