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Tweets by PAS 2023
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Children with Chronic Conditions
Children with Chronic Conditions
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76 - Caregiving Networks for Children with Medical Complexity: A Social Network Analysis Pilot Study
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77 - Changes in Pediatric Hospital Use from 1996-2016 by Adolescents and Young Adults With Chronic Conditions of Childhood
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78 - Comparing Pediatric Chronic Disease Admission Trends Before and During the COVID-19 Pandemic
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79 - Comparison of Two Different Models of Inpatient Care for Medically Complex Children After Spinal Fusion Surgery
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80 - Disparities in COVID-19 Perceptions by Household Primary Language for Children with Medical Complexity
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81 - Identifying risk factors for readmission in children with complex medical conditions
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82 - Longitudinal Hospitalization Trends of Children with Complex Conditions at Children’s Hospitals
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83 - Mental and Behavioral Health Access and Needs Among Children with Medical Complexity
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84 - Parental perspectives about the role of complex care programs: managing the impact of the COVID-19 pandemic on children with medical complexities
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85 - Patient and Family Experience with Transitional Care in a Population of Children with Medical Complexity
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86 - Piloting a Formalized Complex Care Nurse Coordinator Curriculum
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87 - Predictors of Frequent Acute Respiratory Illnesses in Children with Tracheostomies
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88 - The Association between Program Satisfaction and Health System Trust among Families Enrolled in a NYS Medicaid Care Management Program
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89 - The Impact of Moderate-to-Severe Atopic Dermatitis in Children Aged Less Than 12 Years in North America: An Analysis of the Real-World PEDISTAD Study
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90 - Treacher Collins Syndrome associated with disproportionate central nervous system, cardiovascular, otologic complications among 895 patients
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91 - Use of a Co-management Approach to Ensure Safe Transfer of Care for Medically Complex Young Adults across Two Distinct Health Systems
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290 - Benefits and Barriers of Telemedicine Utilization in Children with Medical Complexity: A Qualitative Study on Parent and Caregiver Perceptions
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291 - Care Beyond the Bedside: The More You Do, the More You CAN-DO
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292 - Development of a Web-Based Long-Term Care Planning Tool to Assist Individuals with Intellectual Disabilities and their Families Plan for the Future
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293 - Family Perspectives on After Visit Summaries in a Multidisciplinary Pediatric Neuromuscular Clinic
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294 - Home Health Nursing Agencies’ Services for Children with Medical Complexity: Caregiver and Home Health Nurse Perspectives
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295 - Is stress associated with healthcare satisfaction among families of children with medical complexity? A project on routine caregiver mental health screening to improve quality & effectiveness of care
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296 - Physical and Mental Health Scores in a Sample of Youth with Chronic Conditions During the COVID-19 Pandemic
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297 - Polyarticular Juvenile Idiopathic Arthritis: Building a System of Care to Improve Patient Compliance & Provider Connections
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298 - Reno & Redo: How Families Navigate Home Modifications for Children with Medical Complexity
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299 - Robot-Mediated Social Connectedness Maintains Friendships and Improves School Reintegration for Childhood Cancer Survivors
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300 - Safe and Understood: Nurse Key Worker to Improve Care Coordination for Children with Health Complexity
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301 - Telehealth for children with medical complexity during the COVID pandemic: A qualitative study exploring caregiver experiences
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302 - Transfer of Care for Adolescents and Young Adults: Early Outcomes from a Centralized Navigation Hub
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303 - Transitional Care Management in Complex Care: A Quality Improvement Pilot Study
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712 - A randomized controlled trial comparing the effectiveness of a novel central line securement device to traditional securement methods in pediatric patients
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713 - Design and pilot of an instrument to survey caregivers of children with special healthcare needs about quality of self-management supports
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714 - Determining Clinical Characteristics of Pediatric Patients with Primary Hyperoxaluria Type I in PEDSnet
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715 - Effects of an Individualized Home Assessment on Emergency Preparedness of Families of Children and Youth with Special Health Care Needs
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716 - Experiences of Caregivers of Children and Youth with Special Health Care Needs in an Emergency Preparedness Home Assessment
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717 - Functions of Communication During Emergency Care of Children with Medical Complexity: Caregiver Perspectives
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718 - Impact of Embedding a Coached Nurse for Complex Care Coordination in Primary Care
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719 - Medical Students’ Perceptions of Adults with Disabilities and Their Healthcare: A Survey Study
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720 - Pediatric Long-Term Acute Care for Children with Medical Complexity
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721 - Process Measures in Complex Care Coordination Quality Improvement within the Primary Care Setting
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722 - Processes that Support Adaptation for Caregivers of Children with Medical Complexity: A Qualitative Study
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723 - Rural-Urban Disparities in Clinical Effort Supporting Children with Medical Complexity: Application of a Novel Measure of Clinician FTE
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724 - The association of perceived discrimination and home healthcare on the health-related quality of life in caregivers of children with tracheostomy: A single site cross-sectional cohort study
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725 - Variability in Gastrojejunostomy Tube Usage in Infants and Children
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